by admin | Jun 29, 2025 | Uncategorized
A support worker that has been working for me for 3.5 years is moving on. Yep, she’s leaving me with my amazing other supports, but I feel so sad and left behind with my disability. I know that this is a time to do my best at making space for the grief of losing...
by admin | Jun 29, 2025 | Uncategorized
For the last 20 years of my life, my neck muscle (platysma muscle) has been overactive due to my facial paralysis. My neck helps support my balance, my speech, blinking and other things I’ve been anaware of until now. About 6 weeks ago, my new doctor suggested...
by admin | Jun 26, 2025 | Uncategorized
Many of you know that subsequent to my stroke, my right vision deteriorated and I became legally blind. In 2024 I had a donor corneal graft sewed into my right eye. What was initially 38 non-dissolvable stitches to hold it in place, I am now down to nine stitches....
by admin | Jun 21, 2025 | Uncategorized
My eye patch fabrication process has been led by Dr. Jeff Magallanes, a Maxillofacial Prosthetist from The Royal Melbourne Hospital. His experience and help during the process has been invaluable. Recently, he spoke to me about my lived experience and the value of...
by admin | Jun 17, 2025 | Uncategorized
Today marks 20 years since my brain surgery and subsequent stroke. This has been a very gruelling stage in my life, and I guess continues to be. However, I feel so privileged to be able to advocate and educate and make this experience worthwhile. I definitely find...
