Living With a Disability, Insight, and the Secret Temptation to Pretend I Don’t Have It!
Sometimes I wish I could explain what it actually feels like to live in this body. I have the insight on this post-stroke, sometimes brilliant, sometimes exhausted version of myself, but I sometimes think it would be easier to pretend that I don’t. Having the...The Domino-Effect a Moon Boot had on my whole body!
Lately, it’s become impossible to ignore just how much one part of my body changing can ripple through my entire life. That’s the part people often don’t see. Disability isn’t just the injury or the diagnosis, it’s the domino effect it has throughout. I’m...Designing your own Rehabilitation
Twenty years ago, I had a brainstem stroke when I was 24. I went from being an occupational therapist who supported others in their recovery to someone who couldn’t blink, smile or speak. Neuropathic pain arrived, fatigue settled in and my body no longer followed...Read more“I want to ensure that other People with lived experience are valued and rightly compensated for their unique and valuable insights. So often many assume my input would be voluntary, but I try hard to advocate and educate potential partners of the importance of remuneration. It acknowledges the time, effort, and expertise contributed by people with lived experience. For me, this recognition not only ensures that I can continue to pay for the ongoing expenses but because I feel more valued, I want to contribute more!”
Emma Gee.